Movement Disorders

Support Group Resources

American Parkinson Disease Association Information and Referral Center at Stanford
The APDA I&R Center is a partnership between the American Parkinson Disease Association, Inc. and Stanford University.  It provides Parkinson's Disease patients and their families with information and resources to help understand and manage Parkinson's Disease, to improve the quality of life for both patient and caregiver, while increasing public awareness about the disease.

Care4Dystonia, Inc.
Care4Dystonia, Inc is a nationwide community-based voluntary health organization ( 501c3 nonprofit ) dedicated to: patient care, awareness, collaboration and education for the dystonia community and the general public.

Davis Phinney Foundation

The Davis Phinney Foundation has a single mission. It is to improve the lives of people living with Parkinson's disease. We fund innovative research that will make lives better today while working to prevent and cure this crippling disease tomorrow.

Deep Brain Stimulation
Learn more information about ActivaŽ Therapy, a surgically implanted medical device, similar to a cardiac pacemaker, to deliver carefully controlled electrical stimulation to precisely targeted areas within the brain.

Dystonia Medical Research Foundation
The Dystonia Medical Research Foundation's mission is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.

Dystonia Society
The Dystonia Society provides mutual support for those affected by dystonia, and raises awareness of the condition, particularly among the medical profession, through education and the promotion of research.

Parkinson's Disease & the Art of Moving
A book that tells Parkinson's Disease patients how to exercise.

Huntington Disease Society of America
Huntington Disease Society of America is committed to promoting and supporting research  to find a cure, helping families and communities affected by this disease and educating the public and healthcare professionals about HD.

International Essential Tremor Foundation
The International Essential Tremor Foundation (IETF) was created to provide information, services and support to individuals and families affected by essential tremor (ET).

Medtronics
Learn more about Medtronics and the conditions and diseases that Medtronic products and therapies can help treat.

National Ataxia Foundation
The National Ataxia Foundation is a nonprofit, membership-supported organization established in 1957 to help ataxia families.The Foundation is dedicated to improving the lives of persons affected by ataxia through support, education and research. The Foundation supports research in dominant ataxia (including SCA's), recessive ataxia (including Friedreich's) and sporadic ataxia.

National Parkinson's Foundation
The National Parkinson Foundation serves persons affected by Parkinson disease throughout the world.  The Foundation supports research for a cure and programs dedicated to improving care and quality of life.  NPF provides information, support, and education for persons with Parkinson, their families, and health care professionals.

Neuropsychology

Neurotoxin Institute (NTI) Botox
The Neurotoxin Institute (NTI) is a multi-disciplinary organization created to serve as a comprehensive independent source of information related to the basic science and the clinical applications of neurotoxin therapies. 

New Hope for Dystonia
Learn more information about ActivaŽ Therapy, a surgically implanted medical device, similar to a cardiac pacemaker, to deliver carefully controlled electrical stimulation to precisely targeted areas within the brain.

New Hope for Essential Tremor
Learn more information about ActivaŽ Therapy and how it is used to treat Essential Tremor.

Nutrition

Pamela James Parkinson's Research Fund (PJ Fund)
The Pamela James Parkinson's Research Fund (The PJ Fund) was a Mothers' Day gift from my daughter, CarlaRae Arneson. It was established to help find the cure for Parkinson's disease and to help those affected live life with quality. All of our proceeds go directly to research, education and training in Parkinson's disease. Currently, we are helping to accelerate the pace of research at Stanford University.

Occupational Therapy

Physical Therapy

Progressive Supranuclear Palsy
The Society for PSP is dedicated to increasing awareness of this under-recognized disease,
advancing research toward a cure, and providing hope, support and education for persons with PSP, their families and healthcare professionals.

Psychiatry

Restless Legs Syndrome Foundation
RLS Foundation has information available about restless legs syndrome (RLS). The RLS Foundation's goal is to provide clear and unbiased information to help you find the answers you need about your RLS-diagnosis, treatment and support from others with the condition.

Shy-Drager
Shy-Drager Syndrome/Multiple System Atrophy Support Group (SDS/MSA) is to gather information from each group of people involved (Patients, Caregivers, Family Members, and Physicians) and disseminate that information to all. The SDS/MSA Support Group is an information center and a "Helping Hand" for affected people. 

Speech Therapy
Lee Silverman Voice Treatment (LSVT) is an effective speech treatment program that improves oral communication in individuals with Parkinson's Disease.  View more information about types of treatment and find a speech therapist in your area who is trained in the lsvt method of speech therapy by visiting www.lsvt.org.

Tai Chi for Parkinson's Classes at Stanford University Medical Center
Classes held Saturdays, 10-11:30am at the Atrium of the Stanford University Medical Center (on the ground floor of Stanford Hospital). 
Contact: Jane, (408) 315-1179, parkinsons@sjyogataichi.org

The Parkinson's Institute
The Parkinson's Institute in Sunnyvale, California focuses on three main areas: basic research, clinical research and patient care. The Institute is staffed by physicians and nurses as well as a physical therapist and speech therapist. Opportunities are available for speech therapy, physical therapy and exercise classes.

The Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a national non-profit organization devoted to funding research, providing education and advocating for Parkinson's. The Foundation strives to bring help and hope to as many as one million Americans who now suffer from this debilitating condition.

Torticollis
The National Spasmodic Torticollis Association is a non-profit organization dedicated to providing information and support to ST patients, educating the public and medical community about ST, advocating for the rights of those with ST, promoting research on ST.

We Move
Visit thie comprehensive resource for movement disorder information and activities relating to movement disorder.

Wilson's Disease Association
Wilson's Disease Association (WDA) is an international, all-volunteer organization serving patients, families, and friends. The Wilson's Disease Association funds research on Wilson's Disease. It offers education and support to all those affected by Wilson's Disease and strives to increase awareness about Wilson's Disease. It sponsors an annual conference and support meetings for Wilson's Disease patients and their families and friends.

Young Onset Parkinson's Disease (50 and under) Support Group:
Meets second Tuesday of each month, 6:30 - 8:00 pm, Board Room of Lucille Packard Children's Hospital.  Contact:  Martha Gardner, RN, (408) 257-5152, mgapda@gmail.com

Stanford Medicine Resources:

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