Helpful Links for Patients
Lymphatic Research Foundation
The Lymphatic Research Foundation is a 501(c)(3) not-for profit organization whose mission is to advance research of the lymphatic system and to find the cause of and cure for lymphatic diseases, lymphedema, and related disorders.
Dr. Rockson holds the title of Founding Chair of the Scientific and Medical Advisory Board of the LRF and continues to actively serve as a member of the LRF's Scientic and Medical Advisory Council.
The National Lymphedema Network
An internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
Lymphangiomatosis & Gorham's Disease Alliance
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham"s disease by promoting research that will identify effective treatments and ultimately a cure for these diseases.
STEP UP, SPEAK OUT
Essential Lymphedema Information for All Health Care Providers: from a Physician with Secondary Lymphedema.
Lymphedema People
A site for people with lymphedema, made by people with lymphedema.
Lymphnotes.com
An online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.
Little Leakers
A web site designed for people/kids with Lymphangiectasia (Primary/Secondary) (Intestinal/ Pulmonary and/or any other version there of) and/or parents, caregivers, family members and friends.
Lymphatic Research and Biology
Lymphatic Research and Biology, a quarterly peer-reviewed journal, provides an interdisciplinary forum for the world's leading biomedical investigators to discuss current and anticipated developments in lymphatic biology and pathology.
ClinicalTrials.gov
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.